Patient Forums and Support Groups in Cancer
Administration on Aging, Department of Health and Human Services:
Information for older persons, families, practitioners, researchers, students, and the aging network.
American Cancer Society:
Dedicated to helping persons who face cancer. Supports research, patient services, early detection, treatment and education.
American Urological Association:
Written material, access to about 400 national support groups, no physician referrals.
Asociación Española Contra el Cáncer (AECC) Junior / Spanish Cancer Society Junior:
A resource in Spanish for pediatric cancer patients and their families.
http://www.aeccjunior.org – Only in Spanish/Sólo en español
Bone and Cancer Foundation:
Information for patients and families on the causes and treatment of cancer involving bone.
Breast Cancer Network of Strength:
Written materials; access to support groups nationwide; will provide list of specialists in Chicago area. Lists of breast- cancer facilities nationwide.
Canadian Virtual Hospice:
Information and support on palliative and end-of-life care, loss and grief.
Cancer Care, Inc:
Written material, telephone support groups and counseling; will locate other community services in patient area.
International list of support groups. Also offers links to resources listed by country.
Candlelighters Childhood Cancer Foundation:
Written materials, over 400 peer support groups, and contacts for all family members nationwide.
Canadian-based, bulletin board, links, and support for caregivers.
Caregiver Survival Resources:
Free, easy-to-create websites to help connect friends and family for support during a health crisis or recovery.
FEFOC (Fundación para la Educación Pública y la Formación en Cáncer):
A Spanish resource for the public and patients regarding many different cancer topics. Most of the websites are in Spanish, but FEFOC expects to have all of the translated to English as well in the near future.
Featuring a downloadable workbook on coping with cancer, a weekly live chat and other resources.
E-mail [email protected]. In the body, type, “subscribe HOMEHLTH (your name).”
Phil Kemelor, TEL:
(301) 816-8950 x418
Home Care Nurse:
E-mail [email protected]. In the body of the message, type, “subscribe HCARENURS (your e-mail address).” Contact:
Liz Madigan, [email protected]
I’m Too Young For This! Cancer Foundation For Young Adults:
A TIME Magazine Best 50 Website 2007, the I’m Too Young For This! Cancer Foundation For Young Adults is a global support community for young adults affected by cancer who get busy living and rock on. Our mission is to end isolation and improve quality of life by providing one-stop access to hard to find resources, peer support and social networks.
Matches a person touched by cancer with a mentor of similar experience to ask personal questions and receive support from someone who is uniquely familiar with the experience.
International Confederation of Childhood Cancer Parent Organisations (ICCCPO):
Bringing together information about parent organisations around the world, and providing links to sites which contain information of value for parents and their families.
The Lance Armstrong Foundation unites, inspires and empowers people affected by cancer.
Living Beyond Breast Cancer:
Helpline and a wide variety of breast-cancer related information.
MAHAK is an organization involved nationally (Iran) and internationally in cancer of children and offers services in the fields of Welfare, Medical treatment & Research. In the section of welfare, MAHAK supports the children suffering from cancer and their families in full. Treatment of children with cancer is performed according to the latest methods and based on the last medical know how. In the field of research, the organization engages itself to learn more on diagnostic and preventative measures as well as treatment of different types of cancer.
For five years, this nonprofit group has been providing men’s cancer support and psychosocial programs free and open to the public, and serves as a proven critical resource to men and their families world wide. Their website contains two hundred pages of helpful prostate cancer information, including dozens of pages in English, Spanish, French, Italian and Hebrew.
Mesothelioma Cancer Alliance
Provides a range of information that talks about Mesothelioma cancer itself, the types of treatment that is expected, and preventative measures. Since mesothelioma is a rare cancer, they put a big focus on the care a patient needs.
Helping victims and their families get assistance with medical treatment and travel costs.
Our mission is to guide mesothelioma patients toward answers, information, and healthcare solutions.
Mesothelioma + Asbestos Awareness Center
An educational resource for patients and caregivers looking to learn more about mesothelioma such as cancer care, treatment, and community support.
Mesothelioma Center at Asbestos.com
provides free informational books, packets and a Patient Advocacy program that works 1-on-1 with individuals to help them find local doctors, treatment centers and support groups.
Mesothelioma Help Now
Our main focus is to provide accurate and helpful information, support and resources to patients and their loved one. We want to help them better understand their diagnosis, how to find treatment, and all options available to them.
Mesothelioma Treatment Community
Mesothelioma Treatment Community presented on TreatMesothelioma.org is dedicated to assisting, guiding, and helping mesothelioma patients from around the world. The key focus for them is to promote palliative and immediate care because they exist to not only inspire hope during these unbearable times but to also provide the information needed to improve the life expenctancy of the patient. TreatMesothelioma.org has compiled over 120 pages of resources, infographs, articles, and educational videos so that you can learn everything you need to know about mesothelioma cancer. If by chance you need a bit more guidance, they have a team of volunteers ready to answer any questions you may have. TreatMesothelioma.org is also the largest online resource for mesothelioma treatment options and alternative/complementary therapies. Be earning this title, they are designed to help guide patients and their loved ones toward the answers and support they need to improve their mesothelioma prognosis, life expectancy, and equally important… their quality of life.
The Park Ridge Center:
The Center’s bulletin focusing on spirituality in health care.
The Prostate Cancer Foundation:
Goal is to find better treatments and a cure for recurrent prostate cancer. Provides funding for cutting-edge prostate cancer research and works with research scientists, physicians, government officials and biopharmaceutical industry executives to remove barriers that impede progress toward a cure. Advocates for greater awareness of prostate cancer and more governmental resources for fighting the disease.
Voicing My Choices:
This end-of-life planning guide for adolescents and young adults is now available online.