You are invited to take part in a survey being conducted by run by Dr Ursula Sansom-Daly and her team at the University of New South Wales, Sydney Australia investigating how end-of-life (EoL) care and communication for adolescents and young adults (AYAs) with cancer is delivered by clinicians working with AYAs, and to obtain professional consensus around what their needs/preferences are for training in EoL communication with AYAs with cancer. We are looking for multi-disciplinary healthcare professionals who have been involved with end-of-life care and communication with at least 5 patients between the ages of 15-39 years who have died from cancer.
The questionnaire is entirely online and in two parts. The first should take approximately 20 minutes to complete, the second will be sent 8 weeks later and take approximately 15 minutes to complete.
You will be asked questions about your demographic characteristics (e.g., your age, sex); timing of EoL communication and psychosocial issues; and what type of EoL communication-training is most needed and preferred. Survey items will cover relevant content (e.g., timing of discussions; psychosocial issues at EoL; techniques for broaching difficult topics), and format issues (e.g, length/frequency of training; modality of training e.g., face-to-face, online, etc).
Please note, as the survey is in two parts we will ask you to provide your contact details so we can send you the second survey.
If you are interested in participating please follow the link below to the full information statement and online survey.
https://unsw.au1.qualtrics.com/jfe/form/SV_6PxNeyZxr22H5EV
If you would like any further information about the study please contact Dr Ursula Sansom-Daly via phone (+612) 9382 3114) or email ([email protected]).
If you have any concerns or complaints about the conduct of this study you should contact the Research Support Office of the South Eastern Sydney Local Health District Human Research Ethics Committee on 02 9382 3587, or email [email protected] and quote 18-104.
