Patient Advocacy Academy
(Academia Paciente de Apoyo)
Monday,
9 June 2008 - 8:30 am - 4:30 pm
presented by Kim Thiboldeaux and Peggy Rios PhD
Presented in
English with Spanish translation
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En Inglés con traducción al Español
Target Audience:
The Patient Advocacy Academy is targeted at leaders from non-profit and non-governmental
organizations that focus on psychosocial support, education and advocacy for
people with cancer and their loved ones.
Workshop Objectives:
1. Attendees will build an international network of non-profit and non-governmental
organizations to facilitate ongoing discussion and sharing of best practices,
both at this session and beyond.
2. Attendees will hear from leading patient advocates on cutting edge programs
and initiatives happening worldwide.
3. Attendees will discuss how to navigate the role of pharmaceutical and other
healthcare companies as funders and partners in our work.
4. Attendees will discuss the differences in psychosocial support and services
in low, medium and high resource countries and the need to define standards
of care.
Workshop Description:
This Advocacy Academy is targeted to leaders from non-profit and non-governmental
organizations that focus on psychosocial support, education and advocacy for
cancer patients. The day-long program will examine very broad issues including
differences in psychosocial support and services in low, medium and high resource
countries, and very practical issues including organizational development,
coalition building, fundraising and program innovation and evaluation. This
session is a follow on to the inaugural Patient Advocacy post conference at
the 2007 IPOS Congress. It is our desire to make this an annual offering at
the Congress for patient organizations.
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