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Alliance for Quality Psychosocial Cancer Care
The Alliance for Quality Psychosocial Cancer Care is the result of key leaders in the psychosocial oncology and cancer care community coming together to ensure psychosocial care is integrated into the medical standard of care for people with cancer. The purpose of the alliance is
- To convene key stakeholders committed to implementing the recommendations of the IOM report “Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs.”
- To inform and educate key audiences that quality psychosocial care is critical to optimal clinical outcomes for people affected by cancer.
- To advocate policies to ensure that all patients are screened and have access to quality psychosocial care
- To advance translational research and standards of care in psychosocial oncology
Learn more about the Alliance:
Vision and Organization Statement
Organization Member List
Committee Member List
Alliance letter to IOM
African
Organisation for Research and Training in Cancer
The African Organisation for Research and Training in Cancer
(AORTIC) is
a bilingual (English/French) non-governmental and not-for-profit
organisation that was founded in Lome, Republic of Togo, West
Africa in 1983. It is dedicated to the promotion of cancer control
in Africa. AORTIC International, founded by expatriate African
cancer care workers, scientists and their friends, is committed
to the development of AORTIC in Africa.
AORTIC has published a Report on
their 2005 Palliative Care Training.
AORTIC International
Mailing Address:
c/o: Chris K.O. Williams, MD, FRCPC
3629 Glen Oaks Drive
Nanaimo, BC
V9T 5J8
Canada.
Telephone: (250) 729-0157
Facsimile: (250) 729-0167
E-mail:infomail@aortic.org
Cancerworld
The online world of oncology.
Centre for Palliative Care Education & Research
The Centre for Palliative Care Education & Research
(the Centre) is part of St. Vincent’s Hospital and has an
Advisory Committee. It is affiliated with The University
of Melbourne through the Department of Medicine at
St. Vincent’s and the School of Nursing and Social Work.
The Centre has a statewide role in palliative care education
and research.
The Centre for Palliative Care Education & Research furthers
the development of clinical practice in palliative care through:
- Conducting research relating to palliative care, with
an emphasis on planned and programmed strategic
research having a focus on applied clinical research.
- Developing education programs, directly and indirectly
providing education for:
– Palliative care specialists in medical, nursing
and allied health,
– Generalists including medical, nursing and allied
health professionals (who may be required to
provide palliative care).
- Collaborating with organisations having similar interests
in progressing the quality of palliative care in Australia.
European
Association for Palliative Care (EAPC)
The European Association for Palliative Care (EAPC) was established
on 12 December 1988, with 42 founding members and following important
initiatives by Professor Vittorio Ventafridda and the Floriani
Foundation. The aim of the EAPC is to promote palliative care
in Europe and to act as a focus for all of those who work, or
have an interest, in the field of palliative care at the scientific,
clinical and social levels.
IPOS and EAPC have collaborated on a number of important presentations in recent years, as documented below:
- 2003: IPOS President Christoffer Johansen and EAPC President Stein Kaasa begin discussions for a collaborative partnership between the two organizations.
- 2004: Franco De Conno, chair of the Scientific Committee of the 3rd Research Forum of the EAPC, Stresa, Italy, 3-6 June 2004, invites William Breitbart (USA), IPOS Board member, to give a keynote lecture titled, "Beyond Symptom Control: psychosocial and existential issues in palliative care."
- 2006: Augusto Caraceni (EAPC Board member) and Luigi Grassi (IPOS President) organize a joint IPOS-EAPC Session at the 8th World Congress of Psycho-Oncology in Venice, Italy, 18-21 October 2006, titled, "Pain at the End of Life: the response is not only medication."
- 2007: EAPC organizes a joint IPOS-EAPC session on Communication at the 10th Congress of the EAPC, Budapest, Hungary, 7–9 June 2007.
- 2008: EAPC organizes a joint IPOS-EAPC Session at the 5th Research Forum of the EAPC, Trondheim, Norway, 28-31 May 2008, titled, "The complexity in the understanding and treatment of Depression in PC."
- 2008: IPOS organizes a joint IPOS-EAPC Symposium on Palliative Care at the 10th World Congress of Psycho-Oncology in Madrid, Spain, 9-13 June 2008.
EAPC Head Office
National Cancer Institute
Via Venezian 1
20133 Milano, ITALY
Telephone: +39-02-23903390
Facsimile: +39-02-23903393
E-mail: eapc@istitutotumori.mi.it
European Federation of Psychology Students' Associations (EFPSA)
EFPSA as an international non-profit organisation is run by and
for psychology students. It unites psychology students’ organisations
all over Europe under one multicultural and colourful roof. The
EFPSA was established in 1987 at the first International Congress
of Psychology Students in Portugal.
EFPSA p/a EFPA
Galery Agora, B 421
Grasmarkt 105/18
B-1000 Brussels, Belgium
European
School of Oncology (ESO)
ESO was founded by Umberto Veronesi and Laudomia Del
Drago in 1982, with the aim of contributing to the reduction
of deaths
from cancer due to late diagnosis and/or inadequate treatment.
ESO’s mission is reflected in its motto "Learning
to Care", which stresses the concept of studying and learning
and also of caring for the patient in a global sense. By improving
the skills of all health professionals dealing with cancer patients,
ESO shortens the length of time needed to transfer knowledge
from advanced research centres to daily practice, combining advanced
technology with humanism in care.
V.le Beatrice D'Este, 37
20122 Milan - Italy
Telephone: +39 02 8546451
Facsimile: +39 02 85464545
E-mail: eso@esoncology.org
I'm Too Young for This Cancer Foundation
I'm Too Young for This (formerly Steps for Living) is a 501(c)(3) nonprofit communications,
support and advocacy organization whose mission is to increase
quality
of
life for
adolescents and young adults with cancer by connecting them with
credible cancer survivorship information, human resources and
psychosocial support services.
Our vision is to be the creative voice of cancer survivorship in a future where
the burden of cancer is minimized to that of a chronic condition
similar HIV and Diabetes— a future where it is recognized that
remission is not a cure and focus is on the survivorship lifestyle.
Our goal is to create lasting change in how the public relates to cancer.
Our value is that life is a work of art, unique, expressive and capable of taking
you places that you could never imagine. Cancer doesn't change
that. It's gift is a blank canvas—and when faced with the realities
of cancer, the art of survivorship is all about how you choose
to get busy living.
Contact: Matthew Zachary, Founder/CEO
E-mail: stupidcancer@i2y.com
International
Association for Hospice & Palliative Care (IAHPC)
IAHPC's mission is to increase the availability and access to
high quality hospice and palliative care for patients and families
throughout the world. We do this by promoting communication,
facilitating
and providing education, and by becoming an information resource
for patients, professionals, health care providers and policy
makers around the world.
5535 Memorial Dr. Suite F - PMB 509
Houston TX 77007 USA
Telephone: +1 (713) 880-2940
Facsimile: +1 (713) 880-2948
E-mail: mailto:info@iahpc.com
International
Campaign for Establishment & Development of Oncology Centers (ICEDOC)
ICEDOC objectives are:
- To increase cancer management facilities in the world;
- To improve the quality of the existing services;
- To decrease the morbidity and mortality of cancer;
- To promote the activities of early detection of cancer that
should be tailored for each region and to associate them with
more availability of treatment facilities;
- To assist in tailoring cancer treatment protocols, modalities
and departments according to the specific conditions and the
socio-economic factors in each region taking into-consideration
the views of the local health care givers and community. The
final results should lie within the range of acceptable results.
There will be double way benefits for the patients and the
progress of medicine; and
- To conduct relevant research.
International Palliative Care Family Carer Research Collaboration (IPCFRC)
The IPCFRC seeks to develop a strategic approach to palliative care research planning related to family carers of people requiring palliative care via establishing international partnerships and promoting information exchange. For more information, please refer to our brochure, visit the website, or contact: cpcpa@medstv.unimelb.edu.au.
International
Program for Psycho-Social Health Research (IPP-SHR)
IPP-SHR is a collaborative initiative jointly funded by the National
Health and Medical Research Council and Central Queensland University.
The primary aim of this international program in research is to examine and document
the human experience of serious illness (both physical and mental).
Thus, IPP-SHR is a broad program addressing a wide range of topic
areas including haematology/oncology; mental health; palliative
care; acute medicine; bioethics; rural and remote health; indigenous
health; spirituality; paediatrics; birth studies; and service
delivery evaluation. In essence the program is concerned with
contributing to the development of psycho-social services that
assist people to deal with the many challenges associated with
serious physical and/or mental illness. The core work is to "make
a difference" and this is achieved through research, publication,
education and consultancy activities.
IPP-SHR
PO Box 1307
Kenmore QLD 4069
Australia
Telephone: +617 3374 1792 or +617 3720 8084
International
Society of Nurses in Cancer Care (ISNCC)
ISNCC is the international voice of oncology nursing improving
standards of cancer care through the provision of education,
research and training using international expertise. The society
fosters international networking and interaction amongst cancer
nursing groups and individuals.
375 West 5th Avenue Suite 201
Vancouver, BC V5Y 1J6
Tel: +1 604.630.5516
Fax: +1 604.874.4378
E-mail: info@isncc.org
International
Union Against Cancer (UICC)
UICC is the only international nongovernmental organisation that
is dedicated solely to the global control of cancer. Its vision
is of a world where cancer is eliminated as a major life-threatening
disease for future generations.
Announcing a Global Call to Stop Cervical Cancer! Read
more... www.cervicalcanceraction.org.
International Union Against Cancer
3 rue du Conseil General
1205 Geneva
Switzerland
Telephone: +41 22 809 1811
Facsimile: +41 22 809 1810
International
Union of Psychological Science (IUPsyS)
The International Union of Psychological Science was founded in
1951 to serve as an umbrella international voice supporting "the
development of psychological science, whether biological or social,
normal or abnormal, pure or applied." Today it has National Members
from close to 70 countries, and works to represent the full breadth
of psychology as a profession and as a science.
Pierre Ritchie, Secretary-General
École de psychologie
Université d'Ottawa
145 Jean-Jacques Lussier
C.P. 450, Succursale A
Ottawa ON K1N 6N5, CANADA
Telephone: 613-562-5800 ext. 4827
Facsimile: 613-562-5169
E-mail: pritchie@uottawa.ca
Latin America Association of Palliative Care (ALCP)
The mission of the Latin America Association of Palliative Care (ALCP) is to promote the development of palliative care in Latin America and the Caribbean through the communication and integration of all stakeholders in improving the quality of life of patients with progressive incurable illnesses and their families.
The ALCP is proud to announc the launch of an online course for health professionals interested in palliative care called Introduction to psychosocial aspects of palliative care. The course consists of four modules, for a total duration of four weeks plus a final examination. The topics addressed in the course include:
- Psychological responses to progressive/terminal disease
- Impact on social and family members
- Communication
- Spiritual aspects
Carolina Monti
Belgrano 141
(2900) San Nicolás, Argentina
Telephone: +54 3461.43.3351
E-mail: alcp.administracion@gmail.com
Mayday Fund
The Mayday Fund is dedicated to alleviating the incidence, degree and consequence of human physical pain.
The Mayday Report, A Call to Revolutionize Chronic Pain Care in America: An Opportunity in Health Care Reform, was finalized on 4 November 2009.
Read the final report
Read the press release
Multinational
Association of Supportive Care in Cancer (MASCC)
The Multinational Association of Supportive Care in Cancer (MASCC)
is an international, multidisciplinary organization with members
representing over sixty (60) countries and five continents. Founded
in 1990, MASCC is dedicated to research and education in all
aspects of supportive care for patients with cancer, regardless
of the stage of their disease. In 1998 MASCC joined forces with
the International Society of Oral Oncology (ISOO), an organization
that addresses the management of complications arising in oral
tissues secondary to cancer and its treatment.
Cynthia N. Rittenberg, RN, MN, AOCN
Executive Director, MASCC
500 Rue St. Ann, Suite 223
Metairie, LA 70005 USA
Tel: +1 504-296-2095
Fax: +1 713-583-9725
E-mail: cindyrit@bellsouth.net
National Breast and Ovarian Cancer Centre (NBOCC)
Contacts: Prof Cristine Owen, Dr Jane Turner
E-mail: j.turner@psychiatry.uq.edu.au
National Cancer Control Initiative (NCCI)
Contact: Jane Fletcher
E-mail: Jane.Fletcher@ncci.org.au
Psycho-oncology
Co-operative Research Group (PoCoG)
The Psycho-Oncology Co-operative Group’s mission is to improve the outcomes
of patients experiencing a diagnosis of cancer, their families and carers through
evaluation and implementation of psychosocial and supportive care interventions
for patients, carers, health professionals and the health care system.
The group
was conceived in response to a recognised need to develop the
capacity and co-ordinated collaboration to conduct large-scale, multi-centre
psycho-oncology and supportive care research. PoCoG was successful in
achieving infrastructure funding for two years from the Cancer Institute NSW.
Contact: PoCoG Executive Officer
E-mail: pocog@psych.usyd.edu.au
World Health
Organization
The World Health Organization is the United Nations specialized
agency for health. It was established on 7 April 1948. WHO's
objective, as set out in its Constitution, is the attainment
by all peoples of the highest possible level of health. Health
is defined in WHO's Constitution as a state of complete physical,
mental and social well-being and not merely the absence of disease
or infirmity.
Avenue Appia 20
1211 Geneva 27
Switzerland
Telephone: + 41 22 791 21 11
Facsimile: + 41 22 791 3111
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